A few people have asked what happenned to my blog. The short answer is I didn't keep up with it, thats all. The longer answer is I've just not had the energy/willpower to add blogging to my list of to-dos. I will try to keep up with it in the future. As to why I've had no energy? Well, read on dear friends!
I'm starting to feel like a big bowl of alphabet soup. The list of posible diagnosis keeps growing, I still feel like crud as we try to get to the bottom of this, but at least the doctors here in Montana are TRYING, and LISTENING to me, unlike back home.
The rundown of "probables"
- PTSD
- PCOS
- PA and/or MS
- Celiac
- Crohns or UC
- Disociative Disorder
The "knowns"
- Severe Vitamin D deficiancy (just found this out tonight)
- Low-end "Normal" of B-12 serum levels (further testing needed as serum levels are misleadingly high normally)
The "possibles"
- Bi-Polar (feels so nice to get this off the 'knowns' list!)
I've started b12 sub-lingual supplements--if they help after a month my PCP and I will look at b12 shots. Thursday I pick up mega-dose weekly pills for the Vitamin D issue. 6 weeks of those and then a retest. I see a GI in August--so that will be more testing, very likely including the dreaded endoscopy and colonoscopy. In September I get to go see a neurologist--who I'm assuming will want to poke and prod as well, possibly including a spinal tap.
Right now, I admit it, I'm downright scared. I'm also sick and tired of being sick and tired, y'know? The worst is the gut issues. I know I felt better when I was on a gluten free diet, but I can't go back to that (which will end up being a GFCF diet) until after the testing because it could cause a false negative. So I'm walking that delicate line of eating what I can as normal, without making myself too sick for work, but trying to balance it out with a few "good" foods so I can at least feel full.
